My name is
Miranda Sherman and I was diagnosed with HELLP Syndrome July of 2000. Many
women each year are diagnosed with this pregnancy complication, and some women
even pass away from the effects. To learn about HELLP read through my site.
If
you have any questions about HELLP syndrome that I have not answered here feel
free to e-mail me. My daughter was very premature and if you are a preemie
parent and you have questions or just want to talk, I will do my best.
HELLP Syndrome
is the medical term for one of the most serious complications of pre-eclampsia,
in which there is a combined liver and blood clotting disorder.
(H) Stands for hemolysis, breaking down of red blood cells.
(EL) stands for elevated liver enzymes in the blood, causing liver damage.
(LP) stands for low platelet count, needed for blood clotting.
HELLP Syndrome is life threatening. HELLP is sometimes misdiagnosed as gastritis, acute hepatitis, disseminated intravascular coagulation (DIC), gall bladder disease. As a result, the mother does not receive the right treatment.
(H) Stands for hemolysis, breaking down of red blood cells.
(EL) stands for elevated liver enzymes in the blood, causing liver damage.
(LP) stands for low platelet count, needed for blood clotting.
HELLP Syndrome is life threatening. HELLP is sometimes misdiagnosed as gastritis, acute hepatitis, disseminated intravascular coagulation (DIC), gall bladder disease. As a result, the mother does not receive the right treatment.
When it
comes to diagnosing HELLP syndrome a platelet count appears to be the most
reliable indicator of the presence of HELLP syndrome. The syndrome has been
considered a variant of pre-eclampsia, but it can occur on its own or in
association with pre-eclampsia. Pregnancy-induced hypertension, pre-eclampsia and
HELLP syndrome are related and overlap in their presentations.
Thanks for following my blog, ToddlerToDo! I'm so glad you put this blog up, I learned a lot about this condition, which I have never even heard of before! As I am 28 weeks pregnant I feel like I have some really good information to keep in mind. Good for you for turning a trial in your life around to bless other moms!
ReplyDeleteI've learned a lot too. Bless you for wanting to help others! I'm also on the blog hop--am not really sure what I should be doing:).
DeleteI had HELLP Syndrome back in 1996 during my first pregnancy. My due date was May 26th, and on January 19, I was hospitalized for an abrupted placenta. At that time, very little was known about it. In fact, I was actually diagnosed by a student nurse who had recently been to a workshop on rare ob complications. She had very little info on it...what the name stood for, that statistically 1 in 300,000 women had be diagnosed with it world wide, and that the mortality rate was high for both mom and baby. This was in late March (I was hospitalized this entire time). After conferring with several different OB-GYN's and doing some research, they opted to induce me on April 1st. By this time, I was severely jaundiced, was (and had been) chronically nauseaous, and became severely swollen everywhere--legs & feet, labia, arms & hands, face & lips--and was bruised from head to toe. Definitely NOT the prettiest mom in L & D!! At the time of induction, my husband and I made the most difficult decision--to forego the child in order to save my life. Anesthesia doctors refused to touch me--I would have no epidural due to extremely long, off-the-charts bleeding times they had tested 24 hours earlier. A c-section would only be done if hemoragging could not be controlled. Packed cells and plasma were on standby. They began the induction at 5:30am on April 1. Twenty-two hours later, at 2:56am on April 2, I vaginally gave birth to my daughter, Emily. I had no pain meds--early on, they had injected me with Demerol, but I bled from the site for over 2 hours and they opted to not inject me again. I had no episiotomy--I tore from front to back, inside to out--and required 64 stitches to put me back together. I was bleeding heavily, was completely exhausted, and was in so much pain. But I was alive, and so was Emily. Born at 33 weeks, 6 lbs, 15 oz. and 18.5 inches long, she was taken to NICU, and spent the first month of her life there. I was discharged just two days ahead of her.
ReplyDeleteEmily was diagnosed with PVLM and had developmental delays. She was enrolled in EIP at 4 months and remained in the program through age 3 years. She then attended preschool, and by age 4, had developed to a level equal to a non-premature 4 year old.
She turned 16 just one week ago. She is healthy and beautiful and my joy.
I am still fighting the complications of HELLP syndrome. My liver is four times the size of a normal liver, and has developed fatty infiltrates. I have regular ultrasounds (yearly), and biopsies every 5 years (all have been negative for cancer). My Liver Function Tests (via blood draw) have never returned to normal, and remain quite elevated at this time. I cannot consume any alcohol, cannot take Acetominophen (tylenol) and many other medications that may adversely affect my liver.
I am most interested in hearing from women who also have residual effects from HELLP, particularly from when so little was known about it. Today, so much information on the syndrome is readily available, yet facts on residual effects are hard to find. If anyone is interested in contacting me, my name is Gina and my email is farmwife994@yahoo.com. Thank you for any assistance you could offer.
Thank you for this website.
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